Resources

The following resources refer to Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) with the abbreviations ME, CF, CFS or CFIDS and to Fibromyalgia with the abbreviations FM or FMS.  (* Denotes a new listing or new information.)
If you have read any good books or found any good websites that have proven useful in managing ME/CFS or FM, or coping with chronic illness, helping caregivers, family members or friends, please let us know and we will add them to our list.

MEFM Society of BC

MEFM Myalgic Encephalomyelitis and Fibromyalgia Society of BC
Box 462 – 916 West Broadway
Vancouver, BC  V5Z 1K7
Phone  604-878-7707
BC toll free  1-888-353-6322
Email  info@mefm.bc.ca
www.mefm.bc.ca
Annual membership $25.00

FM-CFS Canada

Graham Mayers, Chairman
FM-CFS Canada
310-1500 Bank Street
Ottawa, Ontario  K1H 1B8
Phone toll free  1-877-437-HOPE (4673)
Email  office@fm-cfs.ca
www.fm-cfs.ca

National ME/FM Action Network
512 – 33 Banner Road
Nepean, ON  K2H 8V7
Lydia Neilson
Phone  613-829-6667
Fax  613-829-8518
Email  mefminfo@mefmaction.com
http://www.mefmaction.com/
Annual membership of $25.00 includes Quest quarterly newsletter

Last updated March 2015

 INFORMATIVE WEBSITES ME/FM

About.com*
This site owned by the New York Times provides blog posts on ME/CFS and FM by fellow sufferer, Adrienne Dellwo. The site is written in plain language and is less technical than some others. It also has a large forum.
www.chronicfatigue.about.com

Medscape*
This site aimed at physicians can also be followed by patients. Sign up for emails on ME/CFS, FM and other medical topics.
www.medscape.com

Phoenix Rising
Phoenix Rising is a patient-run website and forum, an online resource for stories, research briefings and interviews on CFS.
www.phoenixrising.me    www.forums.phoenixrising.me

Health Rising*
Health Rising is run by an expert ME patient, Cort Johnson. Cort writes articles and publishes interviews on the latest research on ME and FM, as well as articles written by practitioners, researchers and other patients.
www.cortjohnson.org

Central Pain Syndrome Information Resource*
This site provides articles about Central Sensitization for patients and medical practitioners.
www.painonline.org

CF Alliance
Offers the following ME and FM services free of charge worldwide: information website, pen pal program and newsletter.
www.cfalliance.org

prohealth.com*
A patient-owned website run by a for-profit company that sells nutritional supplements. It provides a wealth of CFS and FM resources, with a focus on research and treatment news.  You can sign up for articles newly posted on the site.
www.prohealth.com

ME-CFS Knowledge Center
Provides basic information and resources on ME and CFS  from leading authorities around the world.
www.cfsknowledgecenter.com

ME-CFS Community
A member-supported creation of ME-CFS Knowledge Center, Inc. Members come from many countries to learn from and communicate directly with others who are afflicted with ME/CFS.
http://me-cfscommunity.com/

International Association of Chronic Fatigue Syndrome/Myalgic Encephalolmyelitis  (IACFS/ME)
Contains a wealth of information on CFS, ME and FM research, patient care and treatment as well as information on scientific conferences.
http://iacfsme.org/

ME/CFS and Fibromyalgia Information Exchange Forum (Co-Cure)
Now a listserv. Website is no longer functioning.
https://listserv.nodak.edu/archives/co-cure.html

healthy.net*
A for-profit website that offers information on a variety of conditions (including CFS and FM) with a focus on alternative medicine.
www.healthy.net

WebMD Message Board
Kim Jones, RN, PhD, FNP of Portland. OR responds to questions about new therapies for ME and FM.
www.boards.webmd.com/topic.asp?topic_id=92

Stop The Thyroid Madness*
A patient-to-patient educational site with extensive information on thyroid and adrenal issues.
www.stopthethyroidmadness.com

FM-CFS Canada - Compassion in Action
John Ernst is the Executive Director for FM-CFS Canada in Ottawa, ON
Email  office@fm-cfs.ca
www.fm-cfs.ca

Canadian Lyme Disease Foundation
www.canlyme.com / http://canlyme.com/category/lyme-in-bc/

Fibromyalgia Coalition International*
Fibromyalgia Solutions quarterly e-Magazine (back issues available)
Books, CDs, DVD. Teleseminars
Subscription $45.00 in Canada
www.fibrocoalition.org

Pain Pathways Magazine*
Digital subscription magazine. Website has articles, pain information and resources plus a blog.
www.painpathways.org

#MEAction
A Global Movement For Health Equality
Advocacy group with information on the illness, research, individual stories, and advocacy tools.
#MEAction

 ME RESOURCES

ME Victoria Association (MEVA)
PO Box 50032, Victoria, BC V8S 5L8
Phone 250-384-4783
Email  me.victoria@shaw.ca
www.me-cfsvictoria.org
$20.00 annual membership includes a newsletter 6 times per year.

The Myalgic Encephalomyelitis Association of Ontario
Ste. 402 - 170 Donway West
Toronto, ON M3C 2G3
Phone  416-222-8820
Email  info@meao.ca
www.meao.ca
$25.00 annual membership includes a quarterly newsletter. Site provides information on ME, including support group listings, as well as referrals to doctors and attorneys.

ME Society of Edmonton (CFS)
11630 Kingsway Ave NW, Suite 7
Edmonton, AB T5G 0X5
Email  info@mesocietyofedmonton.ab.ca
www.mesocietyedmonton.org

INTERNATIONALhttps://taxaiddabc.org

The National CFIDS Foundation
103 Aletha Road
Needham, MA  02492
Phone  781-449-3535
Fax  781-449-8606
Email  info@ncf-net.org
The second largest ME organization in the US. Its goals are to fund CFID-related medical research and provide information, education and support to those with CFIDS and related illnesses.  Members receive a quarterly newsletter.
www.ncf-net.org

Solve ME/CFS Initiative (SMCI)
Formerly the CFIDS Association of America
PO Box 220398
Charlotte, NC 28222-0398
Phone Toll Free  1-800-442-3437
Resource line  704-365-2343
Fax 704-365-9755
Email  SolveCFS@SolveCFS.org

Probably the largest ME website on the internet with a wealth of information. It is dedicated to conquering chronic fatigue and immune dysfunction syndrome (CFIDS). SMCI launched the Research Institute Without Walls (RIWW), a translational research infrastructure.
All RIWW projects are linked through SMCI and to the SolveCFS BioBank. They publish a newsletter and research news. Free e-newsletter.
www.solvecfs.org

Myalgic Encephalomyelitis Society of America
PO Box 44402 Shreveport, LA 71134
Email  MESocofAmerica@yahoo.com

The ME Society of America is a research, information and advocacy group seeking to promote understanding of ME.  The website offers information about ME/CFS that emphasizes the seriousness of the illness, as well as some scientific references.  An online newsletter called The American ME Review publishes articles, advocacy alerts and research reviews as they arise.
www.cfids-cab.org/MESA

Whittemore Peterson Institute for Neuro-immune Disease
Seminar videos.
6600 N Wingfield Pkwy
Sparks, NV  89436
Phone  775-348-2335
Email  info@wpinstitute.org
www.wpinstitute.org

Clymer Healing Center
Based on the work of Dr. Gerald Poesnecker, Chronic Fatigue Unmasked  2000
www.healing.org

CFS Treatment Guide
A good list of US and International groups and resources can be found at www.cfstreatmentguide.com/national-and-international-cfsme-organizations.html

Action for ME
www.afme.org.uk

ME/CFS Australia Ltd.
PO Box 120, Chapel Street PRAHAN  VIC 3181
2/240 Chapel Street PRAHAN  VIC 3181
Phone  (03) 9529 1344
http://www.me-cfs.org.au/

Associated New Zealand Myalgia Encephalopathy Society Inc.
PO Box 36 307
Northcote, Auckland NZ
Phone  (09) 486 2574
Email  ANZMES@xtra.co.nz
Membership includes quarterly newsletter Meeting Place.
www.anzmes.org.nz

Workwell Foundation
PO Box 1435
Ripon, CA 95366
Email  info@workwellfoundation.org
Phone  209-599-7194
Fax 209-599-4047
PO Box 1435
Ripon, CA 95366
www.workwellfoundation.org

Staci Stevens, MA  is the Founder and Exercise Physiologist who specializes in the evaluation of disability impairment for ME/CFS.
staci@workwellfoundation.org
Christopher R Snell, PhD
Scientific Advisory Committee
Chairchris@workwellfoundation.org
J. Mark VanNess, PhD
Scientific Advisory Committee Member
mark@workwellfoundation.org

Testing Locations

XCEL Physical Therapy
103 East Main Street
Ripon, CA 95366
www.xcelpt.com

Sierra Internal Medicine
926 Incline Way
Incline Village, NV 89451
OC Integrative Medical Center
206 - 1525 Superior Avenue
Newport Beach, CA  92663
www.ocimc.com

 FM RESOURCES

Victoria Fibromyalgia (Support) Networking Group
Fibromyalgia informational meetings are held the first Friday of each month from 2 – 4 pm (except for July and August) in the Woodward Room, Begbie Hall, Royal Jubilee Hospital, Victoria BC.
Contact  Mary Brownscombe at 250-381-5202 or  Carol Brown at 250-381-1182
www.arthritis.ca/bc

INTERNATIONAL

#MillionsMissing
International campaign to raise awareness of the millions of people missing from the work force and society due to being afflicted with ME, and the millions of dollars missing from research desperately needed for diagnosis and treatments for ME.
http://millionsmissing.meaction.net/

#MillionsMissing Canada : The Facebook landing space for the Canadian campaign.

Fibromyalgia
http://www.niams.nih.gov/Health_Info/Fibromyalgia/default.asp

NFA - National Fibromyalgia Association *
1000 Bristol St. North  Suite 17-247
Newport Beach, CA 92660
Phone  714-921-0150
Fax  714-921-6920
Email   NFA@fmaware.org

NFA provides extensive FM-related information and education through its website, monthly online e-newsletter,  quarterly e-Magazine Fibromyalgia & Chronic Pain, medical conferences for both patients and physicians.  Membership includes monthly FMOnline newsletter and other members-only benefits on the website.
http://www.fmaware.org/
Annual membership $25.00

Fibromyalgia Information Foundation (FIF)
Original name: Oregon Fibromyalgia Foundation (OFF)
Oregon Fibromyalgia Foundation
PO Box 19016
Portland, OR 97280
FIF was founded in 1995 and is maintained by FM Researcher Robert M Bennett, MD and Exercise Physiologist Sharon Clark, PhD.
The site provides information to FM patients through its website and its educational meetings in and around Portland.
www.myalgia.com

National Fibromyalgia Partnership
140 Zunn Way
Linden, VA
Phone 1-866-725-4404
Email  mail@fmpartnership.org
NFP focuses on the dissemination of high-quality, medically accurate FM information. Members receive a subscription to Fibromyalgia Frontiers.
www.fmpartnership.org

Fibromyalgia Network
PO Box 31750
Tucson, AZ 85751
Phone Toll Free  1-800-853-2929
Full access to the site requires membership. Also on Facebook.
www.fmnetnews.com

 ME & FM CLINICS AND PROGRAMS

Complex Chronic Disease Program*

Housed at the BC Women’s Hospital & Health Centre, this program is for people who suffer from a group of complex chronic diseases that include, but are not limited to:

  • Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
  • Fibromyalgia Syndrome
  • Lyme Disease

TThe goal for the program is to provide patient and symptom-centered care with the support of the multidisciplinary team of healthcare providers. To visit the program, you must have a completed referral form from your primary health care professional (such as a family doctor, nurse practitioner, naturopathic doctor, or specialist) who will be supporting your daily chronic disease management and following your ongoing health.

BC Women’s Complex Chronic Diseases Program

BC Women’s Hospital & Health Centre
Room B4 West, Shaughnessy Building
4500 Oak Street, Vancouver BC V6H 3N1
Phone  604-875-2061
Phone Toll Free in BC only 1-888-300-3088 local 2061
Fax  604-875-3738
Email  infoccdp@cw.bc.ca
www.bcwomens.ca/Services/HealthServices/complex-chronic-disease-program/default.htm

Dr. I A Hyams Fibromyalgia and Chronic Pain Clinic
A family physician with a special interest in fatigue and pain disorders.
1409 Bellevue Ave
West Vancouver, BC V7T 1C3
Phone  604-922-2426
Fax  604-947-9838
Email  info@drhyams.ca
www.drhyams.ca

Mageta Family Clinic

Hendrick Henstock, MD
A family physician who does trigger point injections for FM.
20528 Lougheed Highway
Maple Ridge, BC V2X 2P8
604-465-1100

Dr. Eleanor Stein
A psychiatrist in private practice in Calgary, Alberta specializing in treating ME/CFS, FM and Multiple Chemical Sensitivities. Offers individual as well as group psychotherapy and web-based resources.  Not currently (April 2014) accepting new patients for individual assessment or psychotherapy.
Phone  403-287-9941
Fax  403-287-9958
Email  espc@eleanorsteinmd.ca

 LABORATORY TESTING RESOURCES

Antibody Assay Laboratories.
AAL Reference Laboratories
715 - 1715 E. Wilshire
Santa Ana, CA 92705
Phone Toll Free   800-522-2611
A highly recommended lab offering a variety of antibody, pathogen, nutritional, allergy and immunotoxicology testing services.
www.antibodyassay.com

Medical Diagnostic Laboratories
133 Gaither Drive, Suite C
Mt. Laurel, NJ 08054
Phone Toll Free  877-269-0090
Fax  856-608-1667
Email  sales@mdlab.com
Recommended by leading researcher Garth L. Nicolson, PhD, for sensitive polymer chain reaction (PCR) specialty tests for CFS/FM patients.  Comprehensive testing for tick-borne diseases, chronic fatigue syndrome, viruses and fungi, and mycoplasma infection.
www.mdlab.com

Great Smokies Diagnostic Laboratory (GSDL)
63 Zillicoa Street, Asheville, NC 28801
Phone toll free 800-522-4762
Phone  828-253-0621 / 828-252-9303
Nationally renowned lab that performs the famous Comprehensive Digestive Stool Analysis of Digestive Function. Tests for candidiasis, immune function, parasite activity. A Comprehensive Antibody Assessment, nutritional assessments, endocrine assessments, and metabolic measures, among others.
https://www.gdx.net/

RED Laboratories
RED Laboratories was founded in 1998 to develop and commercialize the pioneering work of Dr Robert Suhadolnik at Temple University who in 1995 discovered the presence of an abnormal protein in a subset of patients with Chronic Fatigue Syndrome (CFS). This protein is related to a normal enzyme, Ribonuclease L (RNase L), one of the interferon-inducible enzymes, which protects the body during a viral infection. An increased amount of this abnormal protein defines a clinical subset of CFS patients.

In 2000, the Company started its own research and development activities on chronic immune diseases. Assay development and research programs at RED. Laboratories now focus on inflammatory mechanisms, oxidative stress, intestinal dysfunctions and viral infections, all disorders that contribute to the onset and pathogenesis of diseases such as CFS, Multiple Sclerosis, or autoimmune diseases.
http://www.redlabs.be/red-labs/our-science/chronic-fatigue-syndrome.php

23andMe
Personal genetic information and testing.
https://www.23andme.com

 LEGAL INFORMATION RESOURCES

For court decisions in BC
www.courts.gov.bc.ca

For court decisions across Canada
http://library.ucalgary.ca/law

Portal to all BC Legislation*
www.clicklaw.bc.ca

Lawyer Referral Service*
604-687-3221 or
1-800-663-1919

Access Pro Bono*
Free Legal Advice for Low-income People
604-878-7400 or
1-877-762-6664

Dial-A-Law*
(recorded legal information) 604-687-4680 or 1-800-565-5297
Tape 421 - Getting Your Medical Records
Tape 423 - Making a Complaint Against Your Doctor
www.cbabc.org/For-the-Public/Dial-A-Law/Scripts  Select: Health

Dr Alison Bested*
Dr Bested will undertake independent medical examinations for persons in BC. To arrange an examination contact:
Lawyers West
101- 566 Lougheed Highway
Coquitlam, BC  V3K 3S3
778-588-7051
http://www.lawyerswest.ca/contact/

J. Martin Willemse
Insurance lawyer who represents individuals throughout BC who have been denied long term disability claims. Independent medical examinations by Dr. Ian Hyams of Hyams Clinic may be arranged.
Wirsig Matheos
Insurance Denial Lawyers
E-mail: mwillemse@wmlawyers.ca
Tel: 604-583-2200

 

 OTHER RESOURCES

Tips, Webinars, Updates*
http://www.canadianpaincoalition.ca/

Canadian Institute for the Relief of Pain and Disability*
Free podcasts on various aspects of pain
www.cirpd.org
http://www.painbc.ca/chronic-pain/clinics-and-services *

Home Adaptations for Independence*
1-800-407-7757 (ext. 7055)
www.bchousing.org/HAFI
604-646-7055

Deferment of Property Taxes for the Disabled*
http://www2.gov.bc.ca/gov/content/taxes/property-taxes/annual-property-tax/pay/defer-taxes

Newton Resource Centre
Disability Support Advocacy for provincial disability benefits.
A205 - 13588 88 Avenue, Surrey, BC V3W 3K8
Phone  604-596-2311
Fax  604-596-2319 ‘
http://www.sourcesbc.ca

SPARC BC - Disabled Parking Permit Application
SPARC BC advocates for the right of people with mobility issues and provides parking permits for people with disabilities. For more information on parking permit applications contact:
4445 Norfolk Street
Burnaby, BC  V5G 0A7
Phone  604-718-7744
Toll free  1-888-718-7794
Fax  604-736-8697
Email  permits@sparc.bc.ca
www.sparc.bc.ca

Invisible Disabilities Association of Canada
For people with CFS, FM, environmental sensitivities and other disabilities.
www.nsnet.org/idacan

Disability Alliance BC (formerly known as BC Coalition of People with Disabilities)
Helps people with disabilities access provincial income assistance benefits, Canada Pension Plan Disability and other disability-related programs and services.The website has an assortment of informational resources. Annual membership of $15.00 includes a subscription to Transitions magazine.
204 - 456 West Broadway
Vancouver, BC  V5Y 1R3
Advocacy Access  604-872-1278
BC Toll Free 1-800-663-1278
Fax  604-875-9227
http://www.disabilityalliancebc.org/

For website access to Help Sheets and informational resources go to:
http://www.disabilityalliancebc.org/money.htm

Transitions Publication Society  604-875-0188
trans@bccpd.bc.ca

 

Tax Assistance and Information for People with Disabilities (British Columbia)

Tax Assistance and Information for People with Disabilities DABC (Tax AID DABC) is a program offered by Disability Alliance BC (DABC). Through this program, they assist people who are receiving the Persons with Disabilities (PWD) benefit or the Persons with Persistent and Multiple Barriers (PPMB) benefit with simple income tax filings and information/referrals. Haven’t filed your taxes for numerous years? They can help.

Each year they help hundreds of people with disabilities living on low incomes to access disability benefits (provincial and federal), mobility devices, special diet allowances and other health supplements. All services are provided free of charge.

www.taxaiddabc.org
The Arthritis Society of Canada
Toll free 1-800-321-1433
info@arthritis.ca
www.arthritis.ca
Each of the regional offices has a learning centre that offers videos, DVDs, books and other resources to help people living with arthritis, many of which are helpful for people with FM.

The BC and Yukon Division regional offices are located in:
Vancouver  895 West 10th Ave,Vancouver            Phone  604-875-5051
Victoria       2680 Richmond Rd ,Victoria                Phone  250-519-4000
Langley      #101 - 5501 204th Street, Langley      Phone  604-514-9902
Kelowna     150A 1855 Kirschner Rd, Kelowna    Phone  250-868-8643
www.arthritis.ca.bc

Multiple Sclerosis Society of Canada - BC Division
The MS Society of BC has compiled a comprehensive guide to many of the resources and benefits available to people with MS, much of which is also applicable to people with FM and ME.  Download the 2014 MS Resource Manual from the site at http://mssociety.ca/bc/PDF/disability_resource_manual.pdf  or contact them at:
1103 - 4720  Kingsway
Burnaby, British Columbia V5H 4N2
Phone  604-689-3144
Fax  604-689-0377
BC Toll Free 1-800-268-7582
Email  info.bc@mssociety.ca
www.mssociety.ca/bc

Environmental Health Association of BC
Provides information and resources for those with food and chemical sensitivities.

Box 30033, RPO Reynolds, Victoria, BC  V8X 5E1
Phone   250-658-2027
Email   info@ehabc.org
www.ehabc.org
$25 annual membership includes a newsletter

PeerNetBC
Provides training, information and resources aimed at strengthening peer support groups and peer-led initiatives throughout BC.
408 - 602 West Hastings
Vancouver, BC V6B 1P2
Phone 604-733-6186
Fax  604-730-1015
Email   info@peernetbc.com
www.peernetbc.com

Fibromyalgia Wellspring Foundation
Box 1600, Aldergrove, BC V4W 2V1
Phone Toll Free 1-800-567-8998
Phone  778-278-3697
Email  info@fibromyalgiawellspringfoundation.org
www.fibromyalgiawellspringfoundation.org

Vancouver Women’s Health Collective
VWHC advocates for appropriate, quality healthcare for women, provides help and support to women facing health crises, operates a Health Practitioner and Therapist Directory to help women find a healthcare provider specific to their needs . It also offers a non-lending resource library and comprehensive collection of health files on a wide range of health and women’s issues. Services are offered in 9 different languages.

29 West Hastings Street
Vancouver, BC  V6B 1G4
Resource Centre  604-736-5262
Email  vwhc.centre@gmail.com
www.womenshealthcollective.ca

St. Paul’s Anglican Church  
Assists with Canada Pension Plan and other Disability-related claims.
1130 Jervis Street, Vancouver, BC
Phone  604-685-6832
Fax  604-683-3109
Advocacy Office  604-683-4287
stpaulsanglican.bc.ca

St. Mark’s Anglican Church
Assists with BC disability benefits claims.
1805 Larch Street
Vancouver, BC
Phone  604-736-2838
www.stmarks.ca

 PUBLICATIONS

ME & FM Manual

This 156-page manual can be ordered from:
Doug Shore – Support Contact in Abbotsford, BC
Phone & Fax  604-855-9431 (Call first to fax)
Email  deshore@shaw.ca
View, in part, at http://www.oocities.org/capitolhill/1544/

Canadian Abilities Foundation

Convenes a forum for the exchange of information to promote an inclusive society and provide inspiration and opportunity for people with disabilities. This organization circulates a free Abilities monthly e-newsletter.  It also produces an Abilities magazine.
#803 - 255 Duncan Mill Road
Toronto, Ontario M3B 3H9
Email  abilities@bcsgroup.com
http://abilities.ca

 BOOKS

You can find books about FM and ME at your local library, bookstore or online.

From Fatigued to Fantastic
Jacob Teitelbaum, MD. 2001. ISBN 1-58333-097-6 Treatment program for CFS and FM.

Diagnosis and Treatment of Chronic Fatigue Syndrome: It’s Mitochondria, not Hypochondria, Dr Sarah Myhill, MB, BS. 2014. Hammersmith Health Books.

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols
Originally published in Journal of Chronic Fatigue Syndrome Vol 11, Number 1, 2003. Haworth Medical Press. ISBN 0-7890-2207-9

This publication is provided with membership in the MEFM Society of BC
www.HaworthPress.com

Chronic Fatigue Syndrome, Fibromyalgia and Other Invisible Illnesses: The Comprehensive Guide
Katrina Berne, 2002. ISBN 0-89793-280-3

The Doctor’s Guide to Chronic Fatigue Syndrome – Understanding, Treating and Living with CFIDS
David S Bell, MD. 1995. Perseus Publishing  ISBN 0-201-62616-0

Living with ME: The Chronic/Post Viral Fatigue Syndrome
Charles Shepherd, MD. 1999. Vermilion Publishing   ISBN 978-0-09181-679-7

Chronic Fatigue Syndrome/ME:  Support for Family and Friends
Elizabeth Turp.  2011. Jessica Kingsley Publishers  ISBN  978-1-84905-141-5.

Tired or Toxic? A Blueprint for Health
Sherry Rogers, MD. 1990. ISBN 0-9618821-2-3
The first in a series of books by this environmental medicine specialist.
Order from Prestige Publishing
Phone 1-800-846-6687
www.prestigepublishing.com

Alternative Medicine Guide to Chronic Fatigue, Fibromyalgia and Environmental Illness
Burton Goldberg, 1998. ISBN: 1-887299-11-4.

Coping With Fibromyalgia
Beth Ediger. Toronto, ON  LRH Publications, 1991.

Fibromyalgia & Chronic Myofascial Pain Syndrome: A Survival Manual. 2nd ed
Devin J. Starlanyl, MD and Mary Ellen Copeland. 2001. ISBN 1-57224-238-8

The Fibromyalgia Advocate: Getting the Support You Need to Cope with Fibromyalgia and Myofascial Pain Syndrome
Devin J. Starlanyl, MD. 1998. ISBN 1-57224-121-7

Treating Fibromyalgia
Beth Ediger. Fredericton, NB. LRH Publications, 1997.
These two booklets by Beth Ediger are no longer in print, but can sometimes be found.

The Fibromyalgia Help Book: Practical Guide to Living Better with Fibromyalgia
Jenny Fransen, RN and I. Jon Russell, MD, PhD. Smith House Press, 1996.
ISBN  0-9615221-4-3

All About Fibromyalgia: An Essential Guide for Patients and Their Families. Daniel J. Wallace, MD and Janice Brock Wallace. Oxford University Press, 2003. ISBN 019514931

Understanding Post-Traumatic Fibromyalgia
Mark J. Pellegrino, MD.  Anadem Publishing Inc, 1996. ISBN 0-9646891-8-9 (See below)

Inside Fibromyalgia
Mark J. Pellegrino, MD.  Anadem Publishing Inc, 2001. ISBN 1-890018-36-8 (See below)

The Fibromyalgia Supporter
Mark J. Pellegrino, MD. Anadem Publishing Inc. 1997. ISBN 1-890018-11-2

You can order any of the three books by Mark J. Pellegrino from Anadem Publishing:
Phone  1-800-633-0055
Fax  614-262-6630
www.anadem.com

Fibromyalgia for Dummies
Roland Straub. 2002. John Wiley & Sons Canada. ISBN 0-7645544-1-7

Fibromyalgia and Female Sexuality, Marline Emmal, PhD. 2001.*

ISBN 1-552125-80-7 ISBN 978-1-55212-580-9
New, used, ebook www.amazon.com

Fibromyalgia for Dummies
Roland Straub. 2002. John Wiley & Sons Canada. ISBN 0-7645544-1-7

The Fibromyalgia Syndrome: A Clinical Case Working Definition for Practitioners
I. Jon Russell, MD, PhD, Ed. Co-published as Journal of Musculoskeletal Pain, Vol 11, Number 4, 2003. The Haworth Medical Press. ISBN 0-7890-2574-4
www.HaworthPress.com

Fibromyalgia and Muscle Pain: Your Self-Treatment guide
Leon Chaitow, Thorsons Publishers, 3rd edition, 2001. ISBN 0-0071-1502-4

Fibromyalgia: Simple Relief Through Movement
Stacie L. Bigelow, MA. John Wesley & Sons Inc. New York, NY. 2000. ISBN 0-4713-4802-3

Breaking Thru the Fibro Fog: Scientific Proof Fibromyalgia is Real
Kenneth P. White, MD, PhD. Wortley Road Books. 2010. Forward by Dr. Fred Friedberg, PhD.
Available online at www.wortleyroadbooks.com (15% of all proceeds are donated to the American Fibromyalgia Syndrome Association to fund FM research.)

TMJ: Its Many Faces – Diagnosis of TMJ and Related Disorders, 2nd ed  Wesley Shankland II, DDS, MS, PhD. 1998. ISBN 1-890018-23-6
Order from Anadem Publishing Inc. Phone 1-800-633-0055
www.anadem.com

Hope and Help for Chronic Fatigue Syndrome and Fibromyalgia
Dr. Alison Bested, MD,  Alan Logan,ND and Russell Howe, LL.B. 2008. Cumberland House. ISBN 13-978-1-58182-670-8

Living Well With Chronic Fatigue Syndrome and Fibromyalgia
Mary J. Shomon. 2004. HarperCollins Publishers Inc. ISBN 0-06-052125-2
www.thyroid-info.com  www.cfsfibromyalgia.com

The CFIDS and Fibromyalgia Self-Help Book  (New Edition)
Bruce Campbell, MD. 2004.  CSH Press, Palo Alto, CA.  ISBN 0-9705267-1-7
This new edition can be purchased for US$10.95 plus US$10 postage from:
Bruce Campbell,MD
CFIDS Self-Help Program
777 San Antonio Road, #121
Palo Alto, CA 94330-4856
Alternatively, it can be ordered online at:
www.cfidsselfhelp.org

You can contact Dr. Campbell himself via email at:
bruce.campbell@flash.net

Severe ME/CFS: A Guide to Living, Emily Collingridge. 2010, http://www.severeme.info/buy-the-book.html

You Don’t LOOK Sick: Living Well with Invisible Chronic Illness
Joy H. Selak & Steven S. Overman, MD, MPH. 2005. Haworth Medical Press.
ISBN 0-7890-2449-7

How To Be Sick: A Buddhist-Inspired Guide For the Chronically Ill and Their Caregivers, Toni Bernhard. 2010. ISBN 978-0-86171-626-5

Why Can’t I Get Better? Solving the Mystery of Lyme & Chronic Disease,
Richard I. Horowitz, MD. 2013. ISBN 978-1-250-0140-0 (hardcover),
ISBN 978-1-250-03848-7 (e-book)

Auto Accident Survivor’s Guide for British Columbia
Jill Franklin. 2005. ISBN 0-9736611-0-0
Available at local bookstores throughout BC. Call 1-800-667-3848 for the closest store.
Order online at:
www.autoaccidentsurvivorsguide.com

In Praise of Slow: How a Worldwide Movement is Challenging the Cult of Speed,
Carl Honore. 2004. Random House of Canada. ISBN 0-676-97572-0

Fibromyalgia & Chronic Fatigue Syndrome: 7 Proven Steps to Less Pain & More Energy
Fred Friedberg, PhD.  New Harbinger Publications Inc.  2006.   ISBN 978-1-57224-459-7

Forget Perfect.
Lisa Earle McLeod with Jo Ann Swan Neely. 2001. Berkley Trade.
ISBN 978-0-39952-715-9.

  VIDEOS
Forgotten Plague
Feature documentary by Ryan Prior and Nicole Castillo
"Forgotten Plague" is a journey into the hidden world of myalgic encephalomyelitis (chronic fatigue syndrome). It is a chilling tale of our medical system’s failures in addressing many chronic, complex diseases. Yet it is also a riveting story of science’s remarkable ability to transform medicine and improve human life itself.
Voices From the Shadows
“Voices from the Shadows” shows the brave and sometimes heartrending stories of five ME patients and their carers, along with input from Dr Nigel Speight, Prof Leonard Jason and Prof Malcolm Hooper. It was filmed and edited between 2009 and 2011 by the brother and mother of an ME patient in the UK. The film shows the devastating consequences that occur when patients are disbelieved and the illness is misunderstood.
Invisible
A film by Rik Carlson & Michael Thurston
"Because CFIDS is dismissed, relegated to hysterical women, passed off as depression, and not taught in medical schools, in most, if not all cases, patients worsen dramatically.
This film is for parents, spouses, brothers, sisters, friends, neighbors, employers, and physicians. While this disease alone is immensely debilitating, the disregard and misdiagnoses by people of authority causes even more catastrophic results. When the true disease is denied, families are destroyed. When it’s accepted, recovery programs can be developed and healing can begin.
I Remember Me Video
Kim Snyder. The first nationally released film on ME.
You can purchase this film from:
Zeitgeist Films (in the US)
Phone  1-800-509-0448
www.zeitgeistfilms.com or www.amazon.ca