My name is Jana and I provided care to a person with Myalgic Encephalomyelitis (pwME) for several years. My pwME was my husband and the journey from partner to caregiver wasn't easy. I had to learn new ways to cope with shifting responsibilities and priorities, while dealing with what seemed like the loss of a relationship. 

 

One of the first things anyone said to me when they found out that I cared for someone who was chronically ill and bed-bound, whether they were a health care provider, friend, stranger, even my own husband, was that self-care is important. But that is often easier said than done. So I had to find resources that could help me manage it all better. 

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I'd like to say that I figured it out but I didn't. However, I did find some useful resources that are shared here. Everything has been collected based on how it helped me, or other caregivers like me, and I hope you find some of it helpful, too.This page is here to try to help you in your caregiving. Some of the references are to ME-specific caregiver resources or information but many are not. It’s important to note that none of these links are endorsed by the ME|FM Society of BC. 

 

If you have questions, recommendations for sources for this page, or you would like to share your own story, please contact support@mefm.bc.ca.

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