People living with ME and Long COVID that meets the diagnostic criteria for ME (Long COVID/ME) are often desperate for answers, and understandably so. The absence of curative treatments and the history of medical dismissal our community has endured means that when something promises relief, people listen. In our community, we live with profound, disabling illness. We are not naïve. We are in need, and our openness to hope can make us vulnerable to unproven treatments and pote

Access to knowledgeable, well-informed healthcare providers remains one of the biggest challenges facing people living with ME/CFS, Long COVID and Fibromyalgia. Our own survey data backs this up starkly: most patients report that healthcare workers have little, outdated, or incorrect knowledge of these conditions, and "more knowledgeable providers" is patients' top priority for better care. On the clinician side, past BC surveys have found that most physicians feel only moder

The BC Ministry of Health is inviting British Columbians to take part in a new Patient Experience Survey. In response to an earlier version of this survey, the ME|FM Society of BC prepared a written submission grounded in our own research: the BC Patient Experience Survey Report (October 2025), conducted in partnership with the National ME Action Network, BC Lyme Society, and ME Victoria Association. It's the largest survey of ME/CFS, fibromyalgia, Long COVID and Lyme patient

Dr. Alain Moreau, who directs OMF's Collaborative Research Center in Montreal, and his team have published new findings that may help explain why exertion triggers post-exertional malaise (PEM) in people with ME/CFS. The research centers on irisin, a protein released by muscles during exercise, and its relationship with thrombospondin-1 (TSP-1), a protein involved in immune response and wound healing. Comparing 92 people with ME/CFS to 44 sedentary healthy controls, the team

If you live with ME, Long COVID, or another energy-limiting illness, you know the particular exhaustion of explaining your condition to a stranger, again and again, just to get through a day that already takes everything you have. Travel can make this worse: lineups, unfamiliar staff, no time to rest between steps. The Hidden Disabilities Sunflower Program offers a small but meaningful way to skip that explanation. The Sunflower is a discreet lanyard, pin, or sticker that sig

For many people living with ME and Long COVID, one of the hardest parts of the illness isn’t a symptom you can point to on a chart. It’s the silence of a world that has stopped including you, where contact fades, and life can become something you watch from a distance. These illnesses can shrink a person’s world. Post-exertional malaise, profound fatigue, and unpredictable energy strip away work, friendships, family gatherings, hobbies, and community. What’s left for many is