Research and other patient partner opportunities
Introduction
Patient partners are those with lived experience, caregivers and/or family who collaborate with researchers to provide their unique perspectives through the research process.
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The inclusion of patient partners in research results in the following (see here):
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Improved patient safety
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Better health outcomes
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Reduced health care costs
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Better decision-making.
If you want to share your patient experience, below is a list of projects currently seeking patient partners. When choosing a project, consider the following:
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Do you fit the listed criteria?
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Do you have the requisite time and energy to commit fully to the project?
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Can you participate from home or will the project require your attendance elsewhere?​
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Opportunities
Double Blind Randomized Trial of Low-Dose Naltrexone for Post-COVID Fatigue Syndrome (LDN Trial)
This study aims to determine if LDN reduces fatigue and improves related symptoms of PCFS.
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Interested individuals may be eligible for participation if they:
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Are between the ages 19 to 69 years old
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Are a resident of British Columbia, Canada
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Had COVID-19 at least three months ago, as confirmed by a physician or positive test result
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Meet the clinical diagnostic criteria for PCFS (this will be confirmed by a physician)
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Agree to maintain any other regular medications at their current doses for the duration of the trial
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Application deadline is March 31, 2025.
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More information here.
Refresh and Reimagine:
A Healthcare Excellence Canada Strategy Discussion
Help HEC appreciate what healthcare excellence means to you.
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Open to participants across Canada.
Application deadline is April 2, 2025.
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More information here.
Call for Conference Abstracts –
Where's the Patient's Voice in Health Professional Education 20 Years on?
Share examples of how health and social care education can be enriched by patient involvement.
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Open to participants across Canada.
Application deadline is April 15, 2025.
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More information here.
Empowering Mobility:
Exploring the Decision-Making Process of Older Adults in Adopting Power Assist Devices
This project explores the perspectives of older adult manual wheelchair users on power assist devices (PADs) and their decision-making process.
You are 50 or older, currently use a manual wheelchair, can communicate in English, and can give informed consent. Application deadline is May 31, 2025.
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More information here.
Visible:
The pacing app for people with ME/CFS and Long Covid
Using the "Visible" app, participate in a study focussed on the relationship between environment/weather and complex illness.
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Research studies, in partnership with Imperial College London, are ongoing.
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More information here.
